Reply To: Just to ask how you are.

#109410
joss
Moderator

    You may or may not have noticed my absence of late on these forums. I have not fallen out of love with you all, just been really unwell.

    I have multiple medical issues that include Congestive hear failure after triple by pass and a mechanical Aortic heart valve. Recently given a diagnosis for COPD.  Osteoarthritis  of the knees and CKD chronic kidney failure stage 4b 19% kidney function left.

    Since November 2019 My CKD has been getting worse. I have become very anaemic. Was on Iron tabs but nephrologist stopped them in November 2019. In there place I was to have an Iron transfusion. For some reason this did not happen. My anaemia was getting worse, causing me extreme tiredness and shortness of breath.

    As I have mentioned that I have a mechanical aortic heart valve, this means that I have to take blood thinning medication for life. That medication is Warfarin. I have to have weekly blood test to make sure that mu INR is with in a certain range. Usually 3.0 to 3.5.  I succumbed to a UTI that required treating with antibiotics, The first lot did not work. So was given a different type specific to my infection.

    Now I did not know that having these antibiotics could have an effect on my INR  range. So the range moved to 5.9 from target of 3.0 this meant my blood had become so thin it was causing haemorrhaging.

    I was bleeding controllably from gums. Had to call 999 and rushed into to A&E. I lost quite a lot of blood. 2 to 3 units before they managed to stop the bleeding. This was done by packing my mouth with gauss and having a vitamin K transfusion. Vitamin K is the antidote for warfarin.

    So with my already very low red blood cell count, this just topped things off. I was admitted a week later for red blood cell transfusions 2 units I think. Still no Iron infusion at that time. A week later, Last Friday Renal unit called me in for the long over due Iron transfusion. Yay! NO wait. after waiting they decided to cancel the infusion. When asked why they said no recent blood test since transfusion. I was just lost for words and the will to live at that point. They could see how exhausted I was and clearly see me struggling with my  breathing.

    The impact of everything has just made me feel like giving up.

    Back next Thursday to see the consultant nephrologist. There will be fur and feathers flying if they don’t sort this out.

    So forgive my absence dear friends, I am just really not will it of late.

     

    Joss
    Current car: BMW X2 sDrive 20i M Sport 5dr Step Auto In metallic Portimão Blue. 04:10:2025
    Previous car:Peugeot 308 GT Premium 1.2 Pure tech Petrol.