How the hell are you?

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    Topic
  • #156416
    brydo

      It’s been a catastrophic 18 months and if your reading this then, fingers crossed, you’ve survived the worse. Pandemic aside most people on this forum will be suffering from other ailments and, without giving personal details, I think its good to talk about health issues.

      I am fortunate to be relatively healthy, bar I minor heart problem, but mentally this past year or so have been a bit of a struggle but thankfully I’m coming through it.

      So how the hell are you?

    Viewing 25 replies - 26 through 50 (of 92 total)
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      Replies
    • #157532
      ajn

        Yeah just go with the pain, and settle into simple things to do, nothing that taxes the mind to much, yet something to distract the mind seems to work well for me…?

         

        #157534
        Brydo

          Are you into podcasts ajn? There are many out there and I’m sure you could find some that would interest you. You

          #157542
          ajn

            The ginger fisherman on you tube last night, must’ve watched him catch every species of  fish in the UK, podcast heard of it Brydo, haven’t a clue after that lol..

            Night before was stripping down my Sons strimmer carb, quick clean up new diaphragm, Mrs Ajn wasn’t impressed when I started it up 2.45am  ?..

            #157543
            Brydo

              ajn your jacket will be on a shaky hook?  with mrs ajn if you keep that up ?

              #157545
              ajn

                She wasn’t impressed when it happened, however when she got up in the morning laughing , said I knew you were going to do the carb soon as you got up from bed, but starting it up that time typical of me..??..

                #157551
                Phaedra
                Participant

                  I found an email address for the woman I talked to last week so asked her what was happening, got a very encouraging reply (NOT)….

                  “Your information has been passed to our Housing matters team, they have a very large back log of referrals and will call you as soon as they can “

                  Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!

                  #157578
                  ajn

                    @Brydo got a few hours in there Brydo, Thanks for that, @Phaedra I guess it’s a pain dealing with these people, same goes for the Georgie situation, but the only way is what your doing keep at it, and just try to stay focused, easy for me to say I got no patience these days..

                    #158408
                    Georgie

                      Made a follow-up ‘phone call to local hossie this afternoon because I’d used their on’line site to request an initial consultation with their Spine Specialist over 2 months ago and heard nothing back since, other than the initial acknowledgement and a warning that appointments were taking longer to arrange at the moment due to Covid.

                      Passed from pillar to post until somebody finally cracked and gave me the ‘phone number of the Consultant’s personal secretary.  Gave her a call and (gollygoshshockhorrorwhatasurprise) it turns out that my Request had never been forwarded.

                      Sec. was brilliant, I have to confess – asked all the right questions and fixed me up for an appointment on (pause for dramatic effect) Friday 13th of August.

                      All I can say is – Thank goodness it wasn’t for cancer!  (It’s where I went for that and they were pretty darned efficient then, to be fair.  Seen in 3 days, operated on a week later, then 5 days recuperation in hossie and home again on the same day I received a letter from  the NHS offering an initial consultation for five weeks time.)

                      #158419
                      Tharg
                      Participant

                        Well done, Georgie. Only one way to get the NHS to do anything – make a bloody fuss, politely, of course. What you describe is almost exactly what happened to Mrs T over and over again! Letters allegedly posted, never arrive; scan results not forwarded to consultants etc. We found, like you, that the only avenue of comm’s the works is the consultant’s secretary/PA. Stick with it, kid.

                        PS Latest scan results took over six weeks to get to consultant; he’s had them two weeks and we’ve still heard zilch. Waiting for relevant secretary to come back from hols!

                        #158476
                        Georgie

                          Really?  You have to wait for his secretary to get back from her holiday before you can know the result of the scan?  Can he not read and use the telephone at the same time, or something?

                          It gets clearer by the day how much the Tories want to run the NHS into the ground so they can sell of the final few ‘profitable’ bits and then introduce American-style Health Care to Britain.  I am so glad that DH gets Private Health Care through his work.

                          By the way, I went to reorder my prescription on-line this morning to discover that my ‘wonderful’ GP has now decided to also remove Amitriptyline from my list.  So that was another ‘phone call to the Surgery this morning to arrange another ‘phone call from the GP tomorrow afternoon.   I now have to dance this little jig every time I need 3 of my regular meds.  Think of this repeated across the board every day – it’s no wonder GP’s never have time to actually see any patients.

                          Sigh.

                          #158520
                          Tharg
                          Participant

                            “not read and use telephone at same time”? Got it in one. Also too busy ensuring he’s not getting blamed for anything. Bloody arrogant incompetent twat.

                            Same here with scrip drugs disappearing. Always the one you need the most. The program used to order online is a nightmare. Changes every week and rarely works first time.

                            #158562
                            Avatar photostruth
                            Participant

                              he will hopefully settle. my son was staying with me for a while and i got him a house nearish by. he wasnt keen and kept coming back at night to sleep here. I finally got shot of spare bed so he couldnt. Now he is as happy as larry in HIS home. he just needed the push. He has mental health and some phisical handicaps but manages well now. He has a scooter and takes his little dog a walk with it.

                              great to see.  Wish i was fitter tho; Im a wreck lol

                              Current Car: Hyundai Kona Premium EV...2 way 40kg hoist
                              Last Car: Toyota C-HR Excel Hybrid...4 way 80kg hoist

                              #158604
                              Tharg
                              Participant

                                That sound like a great result, @struth. Must be marvellous to see your lad enjoying his independence.

                                #158633
                                Phaedra
                                Participant

                                  Sounds like a great plan 🙂

                                  I’ve just had a call from the HA finacial assessment team, very nice lady who said that as he’s on Universal Credit LCWWRA as well as PIP Standard living/Enhanced Mobility it was a mere formality, still took almost 30mins though!.

                                  Bacically it’s an upstairs 1 bed flat (which we knew) with a wet room and no bath (which is what we have here), neighbours are all “older” so no kids or idiots (hopefully!).  She’s passed it back to the rental team who’ll give us a date/time for a viewing, usually you have to sign then and there but with him being Autistic she’s asked for a 24hr extension for him to think about it.  Also asking them about the pet policy as he may want an indoor cat for company, we could always say it was a support cat 🙂

                                  Apparently there’s no curtains, flooring or appliances etc.  She said we could apply for a grant but as I’ve saved some of his benefits for this we don’t need them so that will speed things up as well.

                                  Now just a matter of dragging him out of the house to go look at it!

                                  Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!

                                  #158647
                                  Georgie

                                    Oh please please please let it be suitable for him.  Is it close enough to you?

                                    #158673
                                    Tharg
                                    Participant

                                      I do hope all goes well, Phaedra. Good luck.

                                      #158677
                                      ajn

                                        Yes Best of Luck both, hope it all works in your favour ??

                                        #158703
                                        Avatar photostruth
                                        Participant

                                          cheers, yes it is.. he gets out now more than i do.

                                          Current Car: Hyundai Kona Premium EV...2 way 40kg hoist
                                          Last Car: Toyota C-HR Excel Hybrid...4 way 80kg hoist

                                          #158704
                                          Phaedra
                                          Participant

                                            Thanks 🙂

                                            It’s in central Durham so about a 15min drive.  Just far enough outside the main city centre so no groups of Uni students hanging about and spreading Covid (we had another cluster last week) but a reasonable 15-20min walk or 5min bus ride to get to it when needed.  By bus it would take him about 20-25mins to get here.

                                            Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!

                                            #158705
                                            Avatar photostruth
                                            Participant

                                              Sounds like a great plan ? I’ve just had a call from the HA finacial assessment team, very nice lady who said that as he’s on Universal Credit LCWWRA as well as PIP Standard living/Enhanced Mobility it was a mere formality, still took almost 30mins though!. Bacically it’s an upstairs 1 bed flat (which we knew) with a wet room and no bath (which is what we have here), neighbours are all “older” so no kids or idiots (hopefully!). She’s passed it back to the rental team who’ll give us a date/time for a viewing, usually you have to sign then and there but with him being Autistic she’s asked for a 24hr extension for him to think about it. Also asking them about the pet policy as he may want an indoor cat for company, we could always say it was a support cat ? Apparently there’s no curtains, flooring or appliances etc. She said we could apply for a grant but as I’ve saved some of his benefits for this we don’t need them so that will speed things up as well. Now just a matter of dragging him out of the house to go look at it!

                                               

                                              great stuff, i hope its suitible for him. he might fight it a bit at first but he will get there

                                              Current Car: Hyundai Kona Premium EV...2 way 40kg hoist
                                              Last Car: Toyota C-HR Excel Hybrid...4 way 80kg hoist

                                              #159771
                                              Phaedra
                                              Participant

                                                Some slight progress with regard to getting my son housing, I had a phone call on Monday from Nicky at HomeGroup to go over getting him “on service” with her as his support worker, took an hour to complete 2 forms (no 1 to 1 visits).  Same thing planned for another 2 forms next Monday.  She can only spend 1hr on a call at a time.

                                                Some better news for me, finally got a letter from my consultant about the kidney masses (only took 7 weeks from getting the scan in June I should have had back in December!). No need to worry, he’s happy that both are benign 🙂

                                                So that just leaves the cardiologist, neurologist and physio to get sorted out 🙂

                                                Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!

                                                #159790
                                                Georgie

                                                  Good to hear that your son’s getting some proper support with his housing situation.  Long may it continue.

                                                  As your ‘masses’ are benign, does that mean you won’t need to have them removed even as a precaution?  As for arranging the rest – there are days when I, too, look at all the hooping lined up ahead and . . . even the thought of it is just wearying, you know?

                                                  #159791
                                                  Georgie

                                                    “hooping”? – ‘hoops’!

                                                    #159793
                                                    Tharg
                                                    Participant

                                                      Sounds promising, Phaedra. Hope second call goes well.

                                                      Seven weeks for getting test results seems to be par for the course. Mrs T waited seven weeks to get results of MRI which, sadly, was inconclusive. More tests needed when Mr Godlike Consultant can extract his highly qualified digit and get on with it.

                                                      #159967
                                                      Phaedra
                                                      Participant

                                                        @Tharg, yes, consultants are wonderful people, best of luck, hope it all goes well 🙂

                                                        The second phone call was a bit of a mess, promised for 1pm, got a text at 2:10 saying she was running 30mins late and would ring at 2:30, got the call at 3:15!.

                                                        Another hour on the phone and another 2 forms completed, mainly risk assessments for him.  She’s ringing back again tomorrow to hopefully finish it all off.  She’s putting in for a grant for furniture, carpets, curtains and appliances etc. so that should save me some money!.

                                                        Still not heard from Believe Housing about a viewing date, they’ve had the completed financial assessment for 2 weeks now.

                                                        Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!

                                                      Viewing 25 replies - 26 through 50 (of 92 total)
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