- This topic has 92 replies, 3 voices, and was last updated 4 years, 5 months ago by
Georgie.
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- June 27, 2021 at 1:27 pm#156416
brydoIt’s been a catastrophic 18 months and if your reading this then, fingers crossed, you’ve survived the worse. Pandemic aside most people on this forum will be suffering from other ailments and, without giving personal details, I think its good to talk about health issues.
I am fortunate to be relatively healthy, bar I minor heart problem, but mentally this past year or so have been a bit of a struggle but thankfully I’m coming through it.
So how the hell are you?
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- July 6, 2021 at 7:33 pm #157532
ajnYeah just go with the pain, and settle into simple things to do, nothing that taxes the mind to much, yet something to distract the mind seems to work well for me…?
July 6, 2021 at 7:47 pm #157534
BrydoAre you into podcasts ajn? There are many out there and I’m sure you could find some that would interest you. You
July 6, 2021 at 9:02 pm #157542
ajnThe ginger fisherman on you tube last night, must’ve watched him catch every species of fish in the UK, podcast heard of it Brydo, haven’t a clue after that lol..
Night before was stripping down my Sons strimmer carb, quick clean up new diaphragm, Mrs Ajn wasn’t impressed when I started it up 2.45am ?..
July 6, 2021 at 9:06 pm #157543
Brydoajn your jacket will be on a shaky hook? with mrs ajn if you keep that up ?
July 6, 2021 at 9:27 pm #157545
ajnShe wasn’t impressed when it happened, however when she got up in the morning laughing , said I knew you were going to do the carb soon as you got up from bed, but starting it up that time typical of me..??..
July 6, 2021 at 11:16 pm #157551I found an email address for the woman I talked to last week so asked her what was happening, got a very encouraging reply (NOT)….
“Your information has been passed to our Housing matters team, they have a very large back log of referrals and will call you as soon as they can “
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
July 7, 2021 at 7:00 am #157578
ajnJuly 13, 2021 at 4:59 pm #158408
GeorgieMade a follow-up ‘phone call to local hossie this afternoon because I’d used their on’line site to request an initial consultation with their Spine Specialist over 2 months ago and heard nothing back since, other than the initial acknowledgement and a warning that appointments were taking longer to arrange at the moment due to Covid.
Passed from pillar to post until somebody finally cracked and gave me the ‘phone number of the Consultant’s personal secretary. Gave her a call and (gollygoshshockhorrorwhatasurprise) it turns out that my Request had never been forwarded.
Sec. was brilliant, I have to confess – asked all the right questions and fixed me up for an appointment on (pause for dramatic effect) Friday 13th of August.
All I can say is – Thank goodness it wasn’t for cancer! (It’s where I went for that and they were pretty darned efficient then, to be fair. Seen in 3 days, operated on a week later, then 5 days recuperation in hossie and home again on the same day I received a letter from the NHS offering an initial consultation for five weeks time.)
July 13, 2021 at 7:27 pm #158419Well done, Georgie. Only one way to get the NHS to do anything – make a bloody fuss, politely, of course. What you describe is almost exactly what happened to Mrs T over and over again! Letters allegedly posted, never arrive; scan results not forwarded to consultants etc. We found, like you, that the only avenue of comm’s the works is the consultant’s secretary/PA. Stick with it, kid.
PS Latest scan results took over six weeks to get to consultant; he’s had them two weeks and we’ve still heard zilch. Waiting for relevant secretary to come back from hols!
July 14, 2021 at 12:54 pm #158476
GeorgieReally? You have to wait for his secretary to get back from her holiday before you can know the result of the scan? Can he not read and use the telephone at the same time, or something?
It gets clearer by the day how much the Tories want to run the NHS into the ground so they can sell of the final few ‘profitable’ bits and then introduce American-style Health Care to Britain. I am so glad that DH gets Private Health Care through his work.
By the way, I went to reorder my prescription on-line this morning to discover that my ‘wonderful’ GP has now decided to also remove Amitriptyline from my list. So that was another ‘phone call to the Surgery this morning to arrange another ‘phone call from the GP tomorrow afternoon. I now have to dance this little jig every time I need 3 of my regular meds. Think of this repeated across the board every day – it’s no wonder GP’s never have time to actually see any patients.
Sigh.
July 14, 2021 at 6:00 pm #158520“not read and use telephone at same time”? Got it in one. Also too busy ensuring he’s not getting blamed for anything. Bloody arrogant incompetent twat.
Same here with scrip drugs disappearing. Always the one you need the most. The program used to order online is a nightmare. Changes every week and rarely works first time.
July 15, 2021 at 10:54 am #158562he will hopefully settle. my son was staying with me for a while and i got him a house nearish by. he wasnt keen and kept coming back at night to sleep here. I finally got shot of spare bed so he couldnt. Now he is as happy as larry in HIS home. he just needed the push. He has mental health and some phisical handicaps but manages well now. He has a scooter and takes his little dog a walk with it.
great to see. Wish i was fitter tho; Im a wreck lol
Current Car: Hyundai Kona Premium EV...2 way 40kg hoist
Last Car: Toyota C-HR Excel Hybrid...4 way 80kg hoistJuly 16, 2021 at 8:57 am #158604That sound like a great result, @struth. Must be marvellous to see your lad enjoying his independence.
July 16, 2021 at 11:28 am #158633Sounds like a great plan 🙂
I’ve just had a call from the HA finacial assessment team, very nice lady who said that as he’s on Universal Credit LCWWRA as well as PIP Standard living/Enhanced Mobility it was a mere formality, still took almost 30mins though!.
Bacically it’s an upstairs 1 bed flat (which we knew) with a wet room and no bath (which is what we have here), neighbours are all “older” so no kids or idiots (hopefully!). She’s passed it back to the rental team who’ll give us a date/time for a viewing, usually you have to sign then and there but with him being Autistic she’s asked for a 24hr extension for him to think about it. Also asking them about the pet policy as he may want an indoor cat for company, we could always say it was a support cat 🙂
Apparently there’s no curtains, flooring or appliances etc. She said we could apply for a grant but as I’ve saved some of his benefits for this we don’t need them so that will speed things up as well.
Now just a matter of dragging him out of the house to go look at it!
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
July 16, 2021 at 12:23 pm #158647
GeorgieOh please please please let it be suitable for him. Is it close enough to you?
July 16, 2021 at 4:38 pm #158673I do hope all goes well, Phaedra. Good luck.
July 16, 2021 at 4:46 pm #158677
ajnYes Best of Luck both, hope it all works in your favour ??
July 16, 2021 at 6:06 pm #158703cheers, yes it is.. he gets out now more than i do.
Current Car: Hyundai Kona Premium EV...2 way 40kg hoist
Last Car: Toyota C-HR Excel Hybrid...4 way 80kg hoistJuly 16, 2021 at 6:07 pm #158704Thanks 🙂
It’s in central Durham so about a 15min drive. Just far enough outside the main city centre so no groups of Uni students hanging about and spreading Covid (we had another cluster last week) but a reasonable 15-20min walk or 5min bus ride to get to it when needed. By bus it would take him about 20-25mins to get here.

Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
July 16, 2021 at 6:07 pm #158705Sounds like a great plan
I’ve just had a call from the HA finacial assessment team, very nice lady who said that as he’s on Universal Credit LCWWRA as well as PIP Standard living/Enhanced Mobility it was a mere formality, still took almost 30mins though!. Bacically it’s an upstairs 1 bed flat (which we knew) with a wet room and no bath (which is what we have here), neighbours are all “older” so no kids or idiots (hopefully!). She’s passed it back to the rental team who’ll give us a date/time for a viewing, usually you have to sign then and there but with him being Autistic she’s asked for a 24hr extension for him to think about it. Also asking them about the pet policy as he may want an indoor cat for company, we could always say it was a support cat
Apparently there’s no curtains, flooring or appliances etc. She said we could apply for a grant but as I’ve saved some of his benefits for this we don’t need them so that will speed things up as well. Now just a matter of dragging him out of the house to go look at it!
great stuff, i hope its suitible for him. he might fight it a bit at first but he will get there
Current Car: Hyundai Kona Premium EV...2 way 40kg hoist
Last Car: Toyota C-HR Excel Hybrid...4 way 80kg hoistJuly 24, 2021 at 11:53 pm #159771Some slight progress with regard to getting my son housing, I had a phone call on Monday from Nicky at HomeGroup to go over getting him “on service” with her as his support worker, took an hour to complete 2 forms (no 1 to 1 visits). Same thing planned for another 2 forms next Monday. She can only spend 1hr on a call at a time.
Some better news for me, finally got a letter from my consultant about the kidney masses (only took 7 weeks from getting the scan in June I should have had back in December!). No need to worry, he’s happy that both are benign 🙂
So that just leaves the cardiologist, neurologist and physio to get sorted out 🙂
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
July 25, 2021 at 11:08 am #159790
GeorgieGood to hear that your son’s getting some proper support with his housing situation. Long may it continue.
As your ‘masses’ are benign, does that mean you won’t need to have them removed even as a precaution? As for arranging the rest – there are days when I, too, look at all the hooping lined up ahead and . . . even the thought of it is just wearying, you know?
July 25, 2021 at 11:09 am #159791
Georgie“hooping”? – ‘hoops’!
July 25, 2021 at 11:36 am #159793Sounds promising, Phaedra. Hope second call goes well.
Seven weeks for getting test results seems to be par for the course. Mrs T waited seven weeks to get results of MRI which, sadly, was inconclusive. More tests needed when Mr Godlike Consultant can extract his highly qualified digit and get on with it.
July 27, 2021 at 2:03 pm #159967@Tharg, yes, consultants are wonderful people, best of luck, hope it all goes well 🙂
The second phone call was a bit of a mess, promised for 1pm, got a text at 2:10 saying she was running 30mins late and would ring at 2:30, got the call at 3:15!.
Another hour on the phone and another 2 forms completed, mainly risk assessments for him. She’s ringing back again tomorrow to hopefully finish it all off. She’s putting in for a grant for furniture, carpets, curtains and appliances etc. so that should save me some money!.
Still not heard from Believe Housing about a viewing date, they’ve had the completed financial assessment for 2 weeks now.
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
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