you don’t thing of the future much when your young and how your disability / illness will affect your quality of life , you just live moment to moment then it hits you.
One of the things iv noticed is not being able to get in n out the bath, also know my wife has a lot of health issues she to can’t get in n out the bath , its like the blind leading the blind who would have thought w e cant do simple things like that ,but you just have to make the most of your situation and do the best you can