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So, after getting a call back about 35mins later I was told to take him to Urgent Care (University Hospital Durham) got there about 12:45am.
Took a urine sample and waited about 45mins to see someone, he said take him to A&E and get bloods checked. A&E weren’t very busy but about 12 people waiting, 90mins for triage then about 2 hours before getting his bloods taken. By this time the waiting time to see a doctor had changed from 7 hours to 10 !!!
Eventually after about another 5 – 6 hours they wanted another set of bloods which meant another 2-3 hours wait. By the time we saw a doctor we’d been there just over 12 hours! Absolutely disgraceful, my son was doubled over in severe pain all the 12 hours we were in A&E, no pain killers, no doctor just nurses checking his blood pressure every 2 hours like everyone else there.
Doctor examined him and moved us into a side ward, then off for a CT scan, looks like Gall Bladder she said then dissappeared.
Nurse eventually came back and told us he’d be staying in a while 🙁
In A&E several people had discharged themselves and by 8am it had quietened down but still a 9-1/2 hour wait, then in the next hour it rapidly filled up again, it was packed by the time I left.
By the time I got him to the main ward and settled we’d been there over 16 hours!
He’s now on an IV drip with fluids, antibiotics and painkillers but still in a lot of pain.
I went home, got 1hrs sleep, then picked up his mum and went bact to visit tonight. Asked what was happening and nurse said the consultant is seeing him tomorrow morning, she also mentioned he’s on nil by Mouth after midnight so they may be looking at surgery tomorrow. Have to phone after 11:30 tomorrow morning to get an update on what the consultant said etc.
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
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No operation today, probably tomorrow.
Had a chat to the ward sister about the lack of information and not asking me about any of his options. She was very nice and has agreed to have me accompany him down to theatre and any pre-op stuff (hopefully) it should be tomorrow.
She’s having a word with the surgical team to get an idea of when that will be so I can get there in time, I only live 10-15mins from the hospital and she’s promised to let me know when I go in tonight and ring me tomorrow if/when they get a time.
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
Sorry, I missed this yesterday and hope your son is ok and managing in a unfamilier enviroment.
I take it you called for emergency doctor appointment and were then told to take him to urgent care by NHS111 nurse?
I always feel slightly uncomfortable replying to another post/thread when there’s a very concerned Dad with a major concern as Phaedra is going through with his Son at the moment, sometimes I simply don’t know how to reply, but will if read try..
Hope things start improve..
Thank you for your replies 🙂
@Kezo, yes, my doctors were useless so 111 it was, took a while to get a call back but they did and sent us to Urgent Care.
@ajn Feel free to comment in any way you want, any input is always welcome 🙂Tonights visit was hit and miss, he was feeling a bit better as he’s now had 2 days worth of IV fluids and antibiotics etc. shoved into him! Painkillers aren’t doing anything though so still in a lot of pain.
I took his mum and sister with me as today is his birthday, not a great place to spend it though! His sister came here Monday to look after the cat and I had deliveries coming that day while we were stuck in A&E, probably going back to her mum’s tomorrow night after visiting him again as it’s her birthday!.
Didn’t get the chance to see the ward sister as she was off doing other things but one of the nurses was very good, confirmed it was an infected Gall Bladder and that they were planning for it to be removed tomorrow.
I explained about needing to be with him and she said they knew and would ring me before he was due to get done. I also told my son to message or ring me when he was knew it was def. getting done so I should be there if all goes to plan.
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
Surprisingly not happening today either 🙁
Can’t say I’m surprised to be honest, just hope it gets removed before anything happens 🙁
They gave him lunch (so def not happening today!) barely warm mince, veg and potato which he couldn’t eat, he did manage the mini ice cream tub, then ended up in the loo about 30mins later 🙁
I have some of his favourite snacks to take in tonight, rice crackers and some Malaysian assorted fruit jelly puddings to see if he can manage those.
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
Shocking the hospital are dragging their feet, when the lads in pain. He must be starving, not being able to hold much down. Fingers crossed it happens tomorrow!
@Kezo
I’ll let you know, after I’ve stopped banging my head against the wall 🙄Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
Hopefully they hurry up, nothing worse than agonising pain, try keep your head up, I know it’s easy me saying that when you’re trying to do so..
Not really any further forward, pain is gone for now, liver enzymes are heading back to normal apparently, not that anyone has told me any of this.
Had another chat with the ward sister last night, had a CT scan yesterday (so no brekkie or lunch) doctor is going to talk to consultant to see if they are still removing it or kicking him out!.
Woke him at 5am today to remind him no brekkie and only clear fluids before his scan today ???? He had no idea he was getting one!, He spoke to the nurses who checked and they knew nothing about it!.
Now found out it’s an MRI, should be today but no idea when so no lunch either!. He’s been in there 5 days now but won’t use the hospital shower and is very upset with the constant lack of information, changing of plans, missing meals etc. etc. and say’s he’s ready to jump out of the window to get away from it 🙁
I asked last night about bringing him home for an hour or two to get a shower etc. but they weren’t too keen on the idea. I was going to go at 2pm today and try again but we don’t know when the MRI will be. I’ll be there tonight and try again, the ward sister is very nice and understands his frustration and how his Autism and being in an unfamiliar enviroment is making everything worse for him. Hopefully I can get him out for a bit.
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
I know what my daughter is like for strange places, but would he have a shower if you were present?
Hope they don’t send home mate, only for it to flare up again in a few weeks, putting him back at square one, which would be unfair on him!
@Kezo No, they asked if he’d go in if I went with him, he really wasn’t keen on that idea!.
They did the MRI about 1:30 so he managed to get a jacket potato for lunch!, he’s ordered the same for tonight as there’s nothing else on the list he likes. Considering how adventurous he is with trying/eating Japanese/Korean foods he sees on the Internet he has a pretty limited range of “English” foods he’ll eat.
I’m just getting ready to set off, took my IBS and pain meds an hour ago so hopefully they’ve kicked in! Once again it’s a 30+ mile round trip as I have to pick up his mum on the way and drop her off on the way home 🙁
Added bonus of also going to the local shop and possibly Tesco megastore just outside Durham on the way to get him some fruit squash etc., assuming he mananges to tell me what kind in the next 20 minutes!.
Small Update
No MRI results tonight, no surprise really, maybe tomorrow.
I have to ring tomorrow afternoon to check I can take him out for a couple of hours, get him home, shower, change of clothes, see the cat etc. etc. May make him feel alittle bit better.Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
They took more bloods this morning, if they come back OK he can leave today!
Then arrange a date to have his gallbladder removed later on.
They’ve removed his IV cannular and given him oral antibiotics, he even got a roast beef lunch today!
So hopefully some good news later today!
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
Thats great news especially for him getting home!
How long would he have to wait for the op, if he does come home?
Didn’t happen!
Ward sister has no idea why he was told that, bloods look ok, they removed his cannalur and switched him to oral antibiotics but apart from that he’s staying put for now.
He’ll have to wait until at least tomorrow when someone may make a decision 🙁
@Kezo No idea, I expect they’ll explain it all when he’s actually discharged.Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
In most circumstances isn’t it unusual to get discharged over a weekend?
I don’t understand the NHS either, discharging someone, only to be added to a waiting list, running the risk of possibilty return to wards if the condition flares up again. Surely this only wastes time by not saying, he’s here now, lets get it over and done with?
How’s he feeling, apart from being issed off?
@Kezo I thought they didn’t discharge at weekends either.
He’s very upset and angry, hates the food and having seen what they’ve been giving him I’m not surprised. The only decent meal he’s had was lunch today, roast beef dinner!. Tea was overcooked and dried out quiche (again) and some really awful looking burnt chips.
I spoke to my Dutch doctor friend who said they usually just take it out and have done with it but getting the infection sorted then sending him home to have to come back again is becoming more common.
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
@Kezo He’s home!, well to be exact he’s at mine 🙂
Had chicken curry and chips from the village delli and is a lot happier!, they gave him a weeks worth of antibiotics and that was it, no lletter for his doctor or mention of re-scheduling getting it removed.
Me, on the other hand, not so happy!!, they’re working on the car park area and as soon as I drove off home I got a low tyre pressure warning light!. turns out there’s now a nice nail in the rear drivers tyre. Tried the Motability online system to get an appointment and it just goes to Kwik-Fits page which when you click on Tyres only asks which ones you want replacing!.
Rang my local branch and I have an appoitment at 3pm, it should be OK to get there, tyre is still inflated. No doubt they’ll say it needs replacing, to be fair the nail is about 1″ from the outside edge so I’ll probably have to get a bus home, problem being there’s only 1 bus an hour as our major bus company no longer covers the route and the bus stop is at the other end of the town, about a 600-700m walk 🙁
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
@Phaedra, I hope everything gets sorted soon. I remember when my mum had gallbladder problems when I was quite young. She had it removed but was in absolute agony before surgery.
I also have some knowledge of infections right now (I’ve had the same infection since November last year, with a few short breaks after a run of antibiotics) it is always better, if possible, to clear the infection before opening up for any surgery as that pretty much guarantees spreading that infection around the local area. It’s probably a good idea to get lots of antibiotics in as soon as possible rather than risk spreading infections and having to deal with a post op sepsis.
I'm Autistic, if I say something you find offensive, please let me know, I can guarantee it was unintentional.
I'll try to give my honest opinion but am always open to learning.Mark
Big surprise, they can’t fix it (who’d of thought?) so new tyre, tomorrow afternoon!.
Had to walk to the bus stop but luckily about half way there got a call from a friend who very kindly came and picked me up 🙂 Just as well as I was knackered!.
He’s offered to give a lift again tomorrow to collect it so that’s nice 🙂
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!
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