oromorph any tips or warnings

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  • #148377 Reply
    mitch
    Participant

    just had the gp on the phone pain clinic have reccomended i stop the codeine and go on to oromorph, dont know dosages etc yet but its the liquid apparently.plus laxatives as even the codeine bunged me up and this stuff is just as bad apparently. plus a refferal to healthy derbyshire whatever that is to help me lose weight.

     

    so i am off to google it all but i figured some of you may be on similar and can offer real world experience.

     

Viewing 25 replies - 1 through 25 (of 31 total)
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  • #148410 Reply
    joss
    Moderator

    Have you tried BuTec morphine patches mitch? That it what i use now.

    Joss
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    #148411 Reply
    mitch
    Participant

    from what i gleaned today i have to try the liquid first to see if it works and i have no reaction and then later they will look at either slow release tabs or the patches.

    tbh i dont mind at the moment how its delivered so long as it at least reduces the pain enough for me to walk and maybe exercise enough to lose some weight. as for sure i cant carry on the way it is at the moment.

    14 steps is about my limit then i have to look to sit down so short of carrying a chair around with me its pretty restrictive.ive a camping chair in the kitchen and a shower chair and a camping chair for the garden so i move from one to the other.

    ive worked out how to dig in the garden sat down which the neighbours found quite amusing.

     

    #148415 Reply
    Lou

    Sorry to hear your not doing too good Mitch, Iv had oramorph in tablet form…for me personally it didn’t touch the sides and I was taking 2 every 4hrs. Iv been on the strong codiene for years (still am) and have been waiting for pain clinic for well over a year (have given up). Sometimes the oramorph made me feel a little spaced out and when I first went on it, I didn’t drive so that I could see how it affected me/made me feel. My gp was and still is reluctant in putting it on repeat due to the addictivness but then codiene can have that effect too. I’m also only in my early 30s so am unsure if that’s partly why. The best thing you can do is take it and try to relax afterwards then monitor how you feel it’s affecting you. Hopefully it is effective for you 👍

    If you don’t mind me asking, what is the pain clinic like? I may re chase my referral up….can they help with meds?

    All the best 🌻😊🌻

    #148438 Reply
    mitch
    Participant

    thanks for the insight lou.

    ive been trying to get refferred to the pain clinic for nigh on 2 years for this problem and the gp kept putting it off and sending me here there and everywhere. in the end theyve introduced a practice physio advisor and about 3 months ago because of covid and no face to face appointments the next delaying tactic was a phone appointment with the physio advisor and i have to say she was awesome. she had reveiwed all the notes and scans the last mri etc and she went into great detail as to why i am having the issues i am and actually explained they cant do surgery so my only hope is pain releif and physio. she then dug into the pain clinic details and said she could refer me herself and would do as an urgent case.

    anyway long story short i had a phone appointment with the consultant at the pain clinic 2 weeks ago and he went through it all and said the codeine obv isnt doing anything now as ive been on it so long and he would write to the gp and change the meds and get them to refer me for diet and physio/exercise etc.

    so monday phone call from surgery to say they were changing the prescription and reffering me for the rest  and i would hear shortly. annoying thinking this could all have been done 2 years ago.

    years ago in a different part of the country i went to their pain clinic for my knees as they were reluctant to do a knee replacement as i had good movement and mobility just  a lot of pain. they were good as well, microwave treatment and a tens machine and aqua therapy in a hydro pool twice a week. unfortunateley could only have 10 weeks of it but they are really good in my experience hence why i was trying to get there this time.

    #148440 Reply
    mitch
    Participant

    lou, when i went to the notts pain clinic for my knees they went through everything meds,lifestyle etc.

    at that time i was taking meds as required but they explained it was better to take them regularly rather than on an as needed basis as it works better they changed it from a higher dose as needed to a lower dose more often and it worked a treat. over the years the dose has had to increase though but the alternative surgery isnt really an option. as i would lose some movement and mobility and they cant guarentee i would lose all the pain so better the devil you know.

    #148441 Reply
    Lou

    Blimey, you had a difficult time getting the referral too. This is what concerns me….taking strong pain meds regularly builds up a tolerance. Iv tried so many different types including tramdadol, have accidentally overdosed a few years back and needed liver etc checking. I am a catch 22 tho as being asthmatic prevents me having the ibpuprofen type meds as it affects my breathing, Iv pretty much exhausted all other types up to the morphine and am waiting for my second major surgery date. There will come a time when surgery won’t be an option either which worries me.

    The gp that said she would refer me was a new gp and suggested I have counselling for my health condition 😐 she hadnt even read my medical history – Iv not seen or spoken to her since. It really knocked me I suppose as my regular gp has always been fantastic and will show a genuine concern if she feels I’m getting worse.

    Its worrying that other health professionals go the extra length to have things sorted and put straight after a visit and discussion when it should really be the GP. I’m really glad that yours has all moved in the right direction after the length of time you have been painfully waiting. I do hope you get your appointment soon and can start to feel more comfortable and I’m really pleased your meds got adjusted to relieve the pain.

    I was originally told to take the pain meds on the as and when basis due to the strength but I can’t function day to day without taking it 4 hourly apart (often the relief doesn’t last that long if at all) I think my gp knows how I manage them as Iv previously discussed it and pick the repeat up monthly without issue. If the gp or pain clinic could reevaluate the meds and give me something that lasts a bit longer I would be so grateful to try it.

    From what you have said, it sounds like an appointment with the pain clinic would benefit myself. I think I’m going to chase the referral as I really have struggled today.

    Thankyou for giving me an insight into what they are like, il try anything if it helps! 👍🌻😊🌻

    #148445 Reply
    mitch
    Participant

    hope you get the appointment lou, ive found they know their stuff the consultant i spoke to on the phone seemed to get it and he immediatley changed the meds and said he will want to see me in person asap.

    in 10 minutes he changed everything effectively i am now awaiting new meds (later today) an appointment for physio/exercise/diet etc and an in person pain clinic appt. both he and the gp’s physioadviser at least read the relevant notes and scans before talking to me which it seems s more than the gp does.

    so even if you can get a phone appt with the pain clinic i think they can help.

    good luck

     

    #148462 Reply
    Tharg
    Participant

    Had to take oramorph a couple of times after operations. Did not get on with it. Made me feel really nauseous and brought on chronic constipation.  Sure that longer-term usage would see the nausea disappear and the constipation can be managed. TBH I did not find it suppressed the pain very effectively. Sorry this all sounds so negative, Mitch. We all react differently to different medicines and, hopefully, it’ll offer some relief.

     

     

     

     

     

    #148471 Reply
    mitch
    Participant

    the constipation is already an issue with the codeine tharg so i suppose i am used to that and the consultant has prescribed laxatives as well so its obv a known issue lol.

    i am just hoping its better than the codeine i suppose i will find out tommorrow, i pick up the prescription later today and have already taken todays pills so the new regime will start tommorrow.

    fingers and everything else crossed.

    #148481 Reply
    ajn

    Mrs ajn has now been diagnosed with ms and on medication for it it’s taken 8years of tests.

    pain clinic telling her it’s in her mind 3 different classes up to 8 weeks  on a one day a week on a weekly basis..

    Shes attended 3 different classes, same thing 🥴

    hydro therapy, physio, electric currents, hypnotherapy, just about every thing..

    Only ever time she’s taken off work is for hospital, and a few operations, worst being removal of tumours xmas time.

    The pain clinic was just trying to push oral morph or what ever it’s called she refused.

    Pain clinics even have partner days so you can discuss how it affects relationships.

    I wasn’t very welcome after they tried to say My wife was thinking she was in pain, years of pain no time off work or for any benefit  payment why would she want to pretend.

    She have now been diagnosed with ms, still works as we speak, like now.

    Pain clinic for us wasn’t very good tbh.

    But please that’s just my opinion and Mrs Ajn too, hopefully different for anyone else.

     

    #148487 Reply
    Georgie

    Sorry to hear about Mrs ajn, ajn.  8 years for an MS diagnosis!  Crikey.  I went to see my old GP with symmetrical tingling in my fingers and toes and he had me in for an MRI in under a week and diagnosed with r/r MS in a fortnight.  Passed on to a Specialist in a month and now on daily Brabio (glatiramer acetate) injections.  (Of course, this was 16 years ago, when the local surgery was still rated ‘excellent’, rather than ‘poor’ like it is now!)

    On the other hand, when I kept going to see the new GP with chronic severe back pain they sent me to a Pain Clinic that set me on the inevitable ‘Physiotherapy twice a week’ path.  When the exercises actually made things worse they added TENS to the routine, followed by injections into the facet joints – until a disc in my lower spine collapsed and left me with inoperable Spondylolisthesis, a spinal cyst and Facet Joint Disease.

    I’d have been better off seeing a Vet.

    #148488 Reply
    ajn

    @Georgie Mrs ajn  has had pain for a long time pushed from pillar  to post, with try this try that nonsense.

    Then a new GP at the surgery some how looked into her files after questioning the many tablets of a repeat prescription.

    Arranged an appointment to see her, sent her to the hospital to a person known to him.

    Tests and scans ended up saying 20 years ago this would have been early ms, now in this day and age people are being denied diagnosis almost as if they are lying.

    During a scan found two nasties that have been removed.

    Now she’s on new medication feeling in her words a lot better😁.

    However this is in our case, please don’t be put off by anything I’ve said, as what don’t work for some will work for others..

    Sorry @Mitch slightly away from the medication you mentioned..

    #148495 Reply
    mitch
    Participant

    thats ok ajn its weirdly reassuring that i am not the only one getting the runaround from their gp.

    #148539 Reply
    Intranicity
    Participant

    Hi Mitch, sadly pain relief is never easy.  Over 20 years I went from Codine, to Oramorh, Diazepam, Oxycodone, BuTrans and at the end Fentanyl.  You just sadly get used to the drugs and they don’t actually give you any relief, but you have all the negative side effects, including withdrawal symptoms.

    It’s not easy, and everyone’s situation is different, for me, in the end, I decided to go cold turkey and came off all pain relief.  It wasn’t easy to put it mildly, but in the end, I didn’t really have many other options.

    4 years on, I feel much better, still have pain, but to be honest, I’m so used to it, it’s my normality and can hardly remember pain free, but my quality of life has improved dramatically (as has going to the loo!!!)

    Pain relief is great for short term conditions, but life long pain, they just don’t work sadly.  Good luck with whatever you decide to do.

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    #148545 Reply
    mitch
    Participant

    totally get where your coming from intranicity, at the moment i am trying to stay upright and out of a wheelchair as with the codeine i can manage about 20 paces and then have to sit for 10 minutes etc etc.

    so the longer i can extend that at the moment the better as i am not ready yet for the alternative.

    its probably inevitable as they cant fix it with an op so i suppose i ought to just accept it and get a wheelchair/scooter.

    had a falling out with the gp again when he turned round and said i have to push myself and just suck it up and do more physio. lol i had to point out that if he read my notes from the army he wouldnt be saying that and had to explain what a combat fitness test involved and what it took to attempt para training or the all arms commando course or even just basic training when all runs were done in boots not comfy slippers lol.

    still took the first oromorph at 6am and so far so good not pain free by any means but definately a difference, was in less pain doing the usual routine this morning breakfast, washing up etc not as sore in the lower back and was able to stand for longer so we shall see.

     

    #148558 Reply
    Karenj

    Just be careful with driving. On oxycontin at 80 mg with another 80 available for breakthrough I was merely told to be careful driving. Like @intranicity I ended up biting the bullet and coming off it all cold turkey , carefully. The pain is worse (obviously) but an hf10 never spine implant has helped enormously. However my clarity and quality of life is much improved I just have to pace and plan a LOT more. Looking back at the me that was on those drugs I shudder to think how I was ok driving. I’m sure I wasn’t.

    #148559 Reply
    Karenj

    *Nevro not never

    #154032 Reply
    mitch
    Participant

    small update, out of the blue today i received a request from war pensions for more information about the swelling of my calves and ankles and wanting to know what medical interventions had happened or were planned and what problems etc i was experiencing.

    odd thought i as only a couple of weeks ago i got the award letter and backdated payment.

    anyway after some digging back to my original application and their award letter it would appear that the award they sent the other week is interim pending further investigation of my legs. that sounds so wrong lol.

    so fingers crossed there may be more to come.

    #154033 Reply
    mitch
    Participant

    oh by the way jury’s out on oromorph, definateley less pain just need the weather to see if i can get about more. and def have to watch the drowsyness so will need to plan any driving not during the first hour or so after taking a dose much better after an hour.

    #154036 Reply
    joss
    Moderator

    Nice one mitch. Looks like someone is doing their job there. Hope it works out in you’re favour.

    Regards Oromorph and driving Mitch. You might want to check the Gov’s legislation on Drug driving.

    Here it is.

    Joss
    ***🌻🌻🌻 ***
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    #154039 Reply
    ajn

    Good advice Joss, no one would want to kill someone because of aches and pains they may be experiencing whilst driving to the shop..

    oh it do happen though, some old bloke went from a petrol pump straight into someone using a cash point, didn’t even turn the steering wheel..🤨

    #154071 Reply
    mitch
    Participant

    thanks joss,already checked i am under the limits and the only side effect at the moment is in the first hour after dosing.

    i was wary of when and how long i drove even on the codeine, impared driving is a pet bugbear of mine.

    ive seen the results at close hand, we were on patrol in northern ireland back in the day and were first on the scene to a drunk drivers rta, as ever the drunk survived 3 others werent so fortunate.

    even so i am restricting myself to local trips 10/15 minutes chemists/doctors and timing them at two hours after a dose. until ive had the first month on the new stuff and then see where we are.

    #154271 Reply
    mitch
    Participant

    ok with some very decent weather at last i have been able to get stuck into the garden.

    the weather aids the knees and it would appear the oromorph does help the back.

    i am still working in bursts but i am now managing over an hour before having to take a half hour break.

    before i was lucky if i got 15/20 minutes. and the recovery is better little in the way of aches afterwards.

    i am going to push on with the garden for know as thats a workout on its own but at some point i am going to see what the walking limit is. also physio appt came through for the 1st for assessment for chair based physio to start.

    #154278 Reply
    joss
    Moderator

    Well done mitch on the garden project. I am pleased that you are seeing the benefits of oromorph.

    Joss
    ***🌻🌻🌻 ***
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    #154281 Reply
    Tharg
    Participant

    Mitch, glad that oramorph seems to be working for you. Mrs T has to take it to control post-operative pain (yup, still getting it!). Says it is the only pain killer which works quickly and doesn’t make her feel croc.

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