Glos Guy – I’m fast approaching the point of not being able to get to work independently, I already have a carer who wheels me over to work, helps set up, gets me settled and then goes back to the car and waits until I have finished when he comes and collects me again for the majority of my shifts. The few remaining shifts where I don’t have that cover are becoming an issue though despite my employer really thinking out of the box to try to overcome the challenges, we’ve sorted one shift where my youngest son drops me literally to the door and then picks me up later which leaves two shifts which are troublesome.
I’m fast coming to the conclusion that my working days may well be coming to an end, even on the limited hours I do now it is having a really awful impact on the progress of my conditions and ultimately, what I am able to do and it feels like I am hanging on by my finger tips to the little I can actually do for myself, including talking (if I push too much, I not only lose the use and control of my limbs but also my speech).
As for Motability, I do plan to have another word with them but with the delays in vehicles arriving, I could well be getting close to or actually have less than a year until my PIP review and despite my limitations and future prognosis, I don’t really want to take it for granted and assume that another award will be given.