Reply To: Update on son’s condition

#306962
Phaedra
Participant

    Not really any further forward, pain is gone for now, liver enzymes are heading back to normal apparently, not that anyone has told me any of this.

    Had another chat with the ward sister last night, had a CT scan yesterday (so no brekkie or lunch) doctor is going to talk to consultant to see if they are still removing it or kicking him out!.

    Woke him at 5am today to remind him no brekkie and only clear fluids before his scan today ???? He had no idea he was getting one!, He spoke to the nurses who checked and they knew nothing about it!.

    Now found out it’s an MRI, should be today but no idea when so no lunch either!.  He’s been in there 5 days now but won’t use the hospital shower and is very upset with the constant lack of information, changing of plans, missing meals etc. etc. and say’s he’s ready to jump out of the window to get away from it 🙁

    I asked last night about bringing him home for an hour or two to get a shower etc. but they weren’t too keen on the idea.  I was going to go at 2pm today and try again but we don’t know when the MRI will be.  I’ll be there tonight and try again, the ward sister is very nice and understands his frustration and how his Autism and being in an unfamiliar enviroment is making everything worse for him.  Hopefully I can get him out for a bit.

    Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!