I’ve been the sole carer for my adult Autistic son since he was first diagnosed at age 15 some 18 years ago.
I’ve tried social services (or whatever they’re called nowadays), various Autism support services, local council support and all have been a complete waste of time. Finally got a nice lady through the housing Key Options team to help when I managed to get him his own flat.
The plan was that she would look after any problems he has with benefits, housing/rent accounts etc. etc. as my own disabilities are not getting any better. He’s been in his flat since August 2021, the last time we could even get hold of her or anyone else was about 3-4 months after he moved in, they said he’s in and will be fine on his own!.
So here we are today, 18 years asking for help and as usual if I don’t do what he needs it doesn’t get done. His mum barely has a relationship with him, she left about 4 months after he was diagnosed, she manages to send Xmas and birthday cards, sometimes on time, but that’s about it. His elder brother can’t help as he lives in Amsterdam, hopefully his younger sister can step up after I’m gone but she has her own problems.
Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!