What a F(&*%*ng year

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    Topic
  • #250659
    MFillingham
    Participant

      For those that have been following my recent events, like @kezo,  or even if you haven’t here’s the year I’ve had to date:

       

      February – I had a lump appear on my right thumb muscle ( you know, the one that sits between your life line and thumb on the palm of your hand) and also my left foot swollen like a balloon.  Turned out they were both cysts, big ones too.  Immediate transfer from doctors to minor injuries who phoned Orthopedics in the main hospital (Treliske) who said send him up, we’ll get him sorted.  Without going home, I had a rapid drive up to A&E where I was collected a while later and taken to the orthopedic ward to be operated on the next day.  2 open woulds later and cysts are gone and I can barely walk due to bone on bone arthritis in right knee and enough bandaging to sink a battleship  on my left foot.  After a visit from the physio I’m released with an inclined shoe, which keeps the weight off the wound.

      That’s followed by 2 months of going to a dressings clinic 3 times a week.

      April comes and I’m discharged from their care.

      July comes and I wake up on a Saturday morning feeling full of flu, which can be a warning I’ve an infection somewhere.  Monday morning I can barely get out of bed due to the worst back pain I’ve ever had, and I’ve got sciatica.  Doctors say it’s muscular (over the phone) give it a week and it’ll pass.  Week later and it’s getting worse. Call doctors, demand help and they’re too busy, call 111 who send and ambulance crew who heave me out of bed on gas and air (I’m a space maaaaan  Whoooooo!!!!)  sit me on an office chair and see how I feel.  They leave a while later saying I need to take pain killers and keep moving.

      I get a call back from the doctors on the Friday who sympathise but agree with the paramedics, it’ll pass.  Monday comes and I’m running a temperature, looking like death warmed up and everyone is getting beyond frustrated.  Call 111 again, forget the doctors completely.  Ambulance arrives and my temperature has peaked significantly, my blood pressure is normal (which considering I’ve been hypertensive for 5 years isn’t normal) and it’s all looking a little wrong for just a pulled muscle.  The took me to A&E (again) who took a mass of bloods and cultures and put me in a cubicle waiting the results.  Verdict there was Sepsis and there’s another infection, possibly lungs.  Took me to the Acute Medical Unit, who look after patients while they try to work out what’s gone wrong.  Most patients stay there for 3 days max, I saw one complete ward change while I was waiting for a full diagnosis.  I had a scan that confirmed 2 DVTs in my right leg, which instantly meant blood thinners by injection 3 times a day.   Saw lots of doctors, had tests galore, and finally saw an infectious diseases consultant who specialised in microbiological diseases.  One MRA later and I’ve got a Strep infection of the spine that’s close to the spinal column and I’ve a cyst (again) this time in my spine.  Started on a very high dose of antibiotic every 4 hours (they take pleasure in waking you up to do the 4am dose) and off to a medical ward to continue treatment.  During the stay I had a Ulcer burst in my gut.

       

      I was released into the care of a critical care at home team, meaning I could have my antibiotics daily from them but at home instead of stuck in a ward.  That was 25 days in hospital.  2 months after that started I completed the IV antibiotic treatment and was meeting the care team weekly for blood tests.  A month later and I was officially discharged from their care.

       

      Through this time I had to cancel an assessment for PIP Change of Circumstance, which would have taken me into Motability’s scope.  So, once healthy I had to chase DWP and then the Assessors to get a new appointment.  That happened last Monday, they were incredibly quick sending the report to DWP who sent me a copy.  That arrived this morning.

       

      I’ve got 12 points for daily living and 12 points for mobility.  Because of the recent history for the spine problems, it’s an 18 month recommendation but that’s enough and, to be fair, about what my consultant is saying before we know what the long term effects of the infection will actually be, until then, it could be improving pain, not improving pain or a trip to the physio.  Very worst case, the infection returns and I’m back to square one.  Hopefully that’s not happening and the consultant says after nearly 4 months of antibiotics at the dose I had, he’d be amazed if it returned.

       

      So, a rather crappy year, to date, with a rather positive end as I can now look to complete my short list, test drive in readiness for the DWP to do their paperwork and get an official acceptance of enhanced rates for both elements.  That’s my next task, shorten the list and book some test drives this side of Christmas.  Hopefully I’ll get something from DWP in time for a new car for Christmas (one dealer has both Ioniq 5s and 6s in stock).

       

      Roll on 2024, please tell me it’s going to be better!!

      I'm Autistic, if I say something you find offensive, please let me know, I can guarantee it was unintentional.
      I'll try to give my honest opinion but am always open to learning.

      Mark

    Viewing 16 replies - 1 through 16 (of 16 total)
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    • #250665
      joss
      Moderator

        Well I can relate to a lot of what you have said @MFillingham. I spend far to much time at Hospital.  But solong as they keep me going, it’s all worth it.

        Chin up MF.

        Joss
        Current car: Peugeot 308 GT Premium 1.2 Pure tech Petrol.

        #250669
        MFillingham
        Participant

          Thanks @Joss, I was getting used to the usual visits, but for appointments, not overnight stays, let alone losing an entire month.

          I'm Autistic, if I say something you find offensive, please let me know, I can guarantee it was unintentional.
          I'll try to give my honest opinion but am always open to learning.

          Mark

          #250675
          kezo
          Participant

            The important thing, your still here and can look forward to hopefully a better 2024,

            Ive heard of strep throat but never strep on your spine?

            #250678
            MFillingham
            Participant

              Streptococcus Aureus is the full term.  It’s a nasty bug that lives harmlessly on our skin but can get into some tricky places and then it’s a monster to get shot of.

               

              I'm Autistic, if I say something you find offensive, please let me know, I can guarantee it was unintentional.
              I'll try to give my honest opinion but am always open to learning.

              Mark

              #250680
              Phaedra
              Participant

                Well that certainly beats my year!

                After having a driver-less over sized Transit plough into my drivers door at 40mph some 3-1/2 years ago I thought I was doing OK until last January.

                Had to be cut out, went to hospital where I was pretty much OK, no major physical damage, was told I had Atrial Fibrilation in the ambulance on the way there.  After a few hours they discharged me and I got the bus home!.  A couple of months later I was getting a diabetic check and they picked up the AF in my foot pulse, nurse brought in my GP and I was put on blood thinners and that was that, or so I thought.

                Over the next 2 years I noticed I was getting prone to mis-judging things on my right side, walking into door frames, falling over with poor balance, missing the opening when putting washing into the washing machine or tumble dryer, typing with increasing mistakes etc.  Reported this to my GP a few times but just said to keep an eye on it.

                In January this year the car insurance claim was finally underway and they sent me to a cardiologist and a neurologist.  Neurologist sent me for a scan and he says I had a clot and now some damage in my left cerebellum, he reckons I either had a stroke during the accidentwhile I was unconcious  or the blood thinners loosened a bit of placue when I was put on them causing the damage.

                Cardiologist was also less than happy, had the usual tests and went home wearing a monitor. Turns out I still have the AF (which I’d guessed), some damage to one of my lower chambers or the valve and a pulse rate of 194!.  Asked my why I wasn’t on Beta Blockers and an ACE inhibitor?, simple answer was nobody had ever said I needed them!.  He put me under the heart failure team, 6 months later I’m on 2 more meds and no longer under them as I’m on the max dosage of all 3 meds and nothing else they can do, unless things get worse!.

                So, from being quite happily ignorant of any problems in January I’m now not so happy!.  Oh, and a broken finger which is still pointing in the wrong diection and doesn’t bend, back at the hospital for that on Weds!  🙂

                Please excuse spelling/typos. Apart from being a clot it turns out I had one on my cerebellum that's now causing various problems!

                #250717
                Jojoe
                Participant

                  After that year, 2024 can only get better.

                  #250724
                  MFillingham
                  Participant

                    After that year, 2024 can only get better.

                    Thanks Jojoe, you’d hope but I really don’t want to jinx it in any way.

                    I'm Autistic, if I say something you find offensive, please let me know, I can guarantee it was unintentional.
                    I'll try to give my honest opinion but am always open to learning.

                    Mark

                    #250746
                    Ele
                    Participant

                      Sending my best wishes and I do hope that things improve for you

                      My take on things

                      When challenges are thrown at us without any choice

                      You have to combat with everything you can muster in the hope that it is enough,even though by doing so can often make us difficult to be around

                      All we can do is

                      Stay strong

                      Stay positive

                       

                       

                       

                       

                      #250772
                      DumfriesDik
                      Participant

                        That top trumps my year as well. I feel your pain and hope you are truly on the mend or better still, mended. ?

                        Whilst on holiday in France, I was had Epididymitis. Or for the men out there, my left ball became larger than an over inflated tennis ball. We returned to the UK for treatment, pronto.

                        Returning to France we hoped to finish off the trip but had to return early due to family emergency. I promise you, 5 days upon our return I started peeing blood and other material. I have a bladder stone! Deep joy, and no, that’s not the name for it!

                        As you say, 2024 can only get better, right?!

                        VW ID3 Max is my DD

                        #250792
                        Gee
                        Spectator

                          Last month i had two heart attacks. I also crashed my new Ford Kuga – the day after picking it up from the dealer. And i got busted by a speed camera meaning after decades of driving i’ve now picked up my first ever ticket.

                          In April i saw a cat get squished by a truck (i’ve had nightmares about that)

                          Oh and i somehow managed to misplace our kettle – which the wife subsequently found in the fridge (another worrying indication of my early onset sadly…)

                          SUMMARY:

                          After all of my own woe’s in 2023 i still wouldn’t swap my year with your year @MFillingham!

                          Keep your chin up friend.

                           

                          #250798
                          MFillingham
                          Participant

                            @Gee, I’m not sure either of us will look upon 2023 fondly.


                            @DumfriesDik
                            I’m about as mended as I’m going to get, until my spine has cleared whatever disc is between the affected vertebrae and they fuse together.  Until then it’s just back ache??

                             


                            @Burgerman333
                            I agree, you either grow through the trials put infront of us or fold up and whimper in the corner.

                            I’ve learned a fair bit about myself and the priorities I’d set and, unsurprisingly, they’ve nearly all changed this year.

                            I'm Autistic, if I say something you find offensive, please let me know, I can guarantee it was unintentional.
                            I'll try to give my honest opinion but am always open to learning.

                            Mark

                            #250822
                            Ele
                            Participant

                              @DumfriesDik I’m about as mended as I’m going to get, until my spine has cleared whatever disc is between the affected vertebrae and they fuse together.  Until then it’s just back ache??

                              ……………………………………………………………………………………………….

                              Blimey a first 4 me

                              A decade on and I find someone with the same chronic condition as myself

                              Unfortuantly my all 5 lumbar collapsed causing stenosis which  lead to neurogenic claudication (For others …..This is a narrowing of the space around your lower spine, which can put pressure on your spinal cord directly. It can and did in my case also compress the blood vessels around the spine, depriving it of oxygen-carrying blood) nutshell not enough required oxygen being supplied to my legs result cannot walk very far

                              So far shit decade lol

                              #250830
                              MFillingham
                              Participant

                                Similar, not quite the same.  Mine is the effects of having a cyst eating away at whatever it could.  Thus there’s narrowing of the gap between the vertebrae at L3/4 and damage to the end plates.  The long term expectations are that the remaining disc will finally be removed and then the bone will fuse together.  What long term impact that has remains to be seen but none of it sounds particularly pleasant. The closest effect I get is sciatica type pain shooting down my left leg (typically that’s the good one) but, so far, blood supply is fine.  What makes me feel much better is that I know of 2 people with the exact condition I have, both were left unable to walk as the infection hit the spinal chord itself.  At that point, I’m feeling rather delighted to be walking at all.

                                 

                                I hope they can find something that eases the condition for you.

                                • This reply was modified 7 months, 2 weeks ago by MFillingham.

                                I'm Autistic, if I say something you find offensive, please let me know, I can guarantee it was unintentional.
                                I'll try to give my honest opinion but am always open to learning.

                                Mark

                                #250841
                                Ele
                                Participant

                                  Seems your going through the wars

                                  Trouble is as each stage progresses it brings different challenges

                                  Was told from the off that surgical intervention was ruled out due to being complex multi level

                                  Like you Im waiting for the spine to fuse,

                                  Cant complain as childs play compared to my 6 weeks in ITU in 1986 with a brain/cerebral abscess that led to temp paralyzed arm/face

                                  Anyways thats enough of all that as tomorrow is another day

                                  And everyday just like today I intend to make the most of things

                                  Best wishes fella and roll on summer

                                   

                                   

                                   

                                   

                                  #250870
                                  Avatar photoMenorca Mike
                                  Participant

                                    I look a life like this there are 3 people in this world those that can count and those that can’t

                                    #250879
                                    Ele
                                    Participant

                                      Agree lol

                                    Viewing 16 replies - 1 through 16 (of 16 total)
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